TheMailbag UOA Jacksonville Chapter #211
Volume 5 Issue 2
Meetings are held at the Baptist Medical Center
8th Floor - Meeting Room C - 3rd Sunday of each month 3PM
Brenda Holloway -- President 282-8181
Ronald Perry -- Vice President 774-4082
Patti Langenbach -- Secretary
Beth Carnes -- Treasurer 786-2359
(800) 741-0110 (904) 396-7827
Please plan to join us
Sunday Feb 16th starting at 3 p.m.
Inside this issue
Minutes of the January
UOA 2002 Advocacy Report
The Overactive Ileostomy
Ostomy Chat Room
A MESSAGE FROM THE PRESIDENT & VISITATION COORDINATOR
would like to take this opportunity and thank everyone that attended our
January, 2003 meeting. Louanne, the representative from Hollister was
there and put on a very informative presentation about their new Ostomy
supplies. We would also like to thank her for coming.
February 2003, a suggestion that
we breakdown into groups according to our types of ostomates and give
each other helpful hints, ideas and discuss any problems that each may
be facing. So we have decided to go ahead and do this. Soooo, I need
your help. We need the “OLD TIMER’S”
to attend, this way they can share with the new ostomates their
experiences and give them helpful advise and tips. So, please try to
attend this meeting and help the new ostomates and new members.
would like to thank Eugene Sommerville for helping me on January 8, 2003
put the Doctor and ET’s folders together. I had some medical problems,
which keep me from distributing them last month so I am just going to
say I am going to try to get this done this month.
Please mark your calendars for March 16, 2003, as Patti will be
putting on a Cymed presentation, as they do not have a representative
for this area at this time. Patti volunteered to put it on and Cymed
will be mailing her all the information necessary to present their
product so please plan to attend.
NOT FORGET that we have dedicated the month of April (April 27,
2003) for our Visitation Program Training so please mark your
calendars. It is important for me to know if you plan on attending.
Please contact me so that I have enough booklets made up for the
training. My numbers are (904) 282-8181 or (904) 742-6504 (cell). We
need certified visitors so please think about it, call me and plan on
Thank you for your time and hope to see you at the meeting on February
Brenda L. Holloway
UOA, Jax Chapter 211
President & Visitation Coordinator
Minutes of the January 19th Chapter
The meeting was brought to order at
3:15 by president, Brenda Holloway. Brenda introduced our guest speaker,
Louanne King with Hollister Inc.
Louanne King was here last January but
graciously agreed to return this year. She explained that Hollister was
started 80 years ago by a printer who sold birth certificates to hospitals.
He later started producing ID bracelets for hospitals. After an employee’s
relative had a colostomy, he introduced Hollister’s Karaya pouches (which
are still on the market today). Hollister is now a totally employee owned
Louanne had several products to
display including the new image two-piece line, new adapt paste and rings
and M9 pouch deodorizer.
Brenda wanted to thank Betsy Raiford,
RNP with Riverside Internal Medicine for the generous donation of a personal
copier and fax machine for the chapter to use. Betsy is also an Enterostomal
We also received a $40.00 donation
from Annabelle Merkel to help cover the cost of sending a newsletter to a
Brenda and Eugene put together over 50
packets for doctors and new patients.
Our Visitation training program will
be the last Sunday in April. This will be held during our regular meeting.
More information to follow.
Brenda said that the UOA website has
been changed (www.uoa.org).
Patti also said that there is an excellent website for ostomates (www.stuartonline.com).
This website has a chat room every Tuesday at 9 pm EST.
The national conference is Aug 10th –
13th in Las Vegas. Patti said we should start raising money to help send
Patti read the minutes from the
Beth read the Treasurer’s report. We
have $762.92 in the bank with $20.00 petty cash.
The 50/50 for December and January was
Ron Perry just got out of the hospital
a few days ago.
Beth recommended that we use the
February meeting as an opportunity to break up into groups. Patti
volunteered to speak as the Cymed representative at the March meeting and
April will be the Visitation Training Program with Kathy Johnson, CETN.
The meeting was adjourned at 4:15 for
refreshments and further discussion with Louanne.
Minutes respectfully submitted by
Patti Langenbach, Secretary
Visit StuartOnline Ostomy Chat Room Tuesday evening 8PM CST:
Sponsored by Medical Care Products
UOA 2002 Advocacy Report
Aukett, firstname.lastname@example.org Chair of UOA Government Affairs Committee,
transmitted by e-mail on Jan 1, 2003 to members of UOA's Action E-List
Happy New Year!
After looking over
some statistics for activity on the UOA Advocacy page during the past year,
it is timely to let you know what that activity was, and the result it
obtained for UOA and our members. We owe a great debt of gratitude to those
of you who have taken advantage of the Advocacy page to contact your elected
officials on behalf of UOA.
First some raw
email messages were sent through the communication function of the Advocacy
page. (There may have been additional ones printed and mailed -- we don't
have a way to tally those unless you let us know you have done it.)
some of those went to media outlets and US agencies, the vast majority
(2,291) went to members of Congress.
US Senator received a message about at least one UOA issue (in fact, every
Senator received at least two messages).
or all but 2, US Representatives received at least one message.
and Texas letter-writers lead the pack, with 121 messages to Senator Bob
Graham, 112 to Senator Bill Nelson, and 86 each to Senator Phil Gramm and
Senator Kay Bailey Hutchison. Other states with highly-active letter-writers
include California, Illinois, Nebraska, Massachusetts and Michigan.
were very responsive to our requests for letters on the major issues of
messages asked elected officials to intercede with CMS to retain the
Medicare codes that were put in place as of 4/1/02;
173 letters were sent to thank Members of Congress for their support that
achieved those 4/1/02 codes to begin with;
messages asked for support of the "IBD Act";
messages urged officials NOT to support the concept of competitive bidding
for durable medical equipment, and an additional 251 messages specifically
opposed Senator Graham's bill for competitive bidding (S.3098).
Now, the outcomes:
Our letters about retaining the Medicare codes had some indirect benefits in
the overall campaign. Only a few Congressmen actually wrote letters to the
Centers for Medicare and Medicaid Services (CMS) on the issue, but we know
that phone calls and other inquiries were made to CMS, heightening their
awareness that this was an area of concern. In the long run, the 4/1 codes
that recognize "pouch features" such as filters have been repealed and a new
code system put in place (more about that elsewhere).
However, CMS DID
listen to our concerns about the very low reimbursement levels that existed,
and they DID agree to base fee schedules for the new system on current
pricing -- this is a major concession on their part that would not have
happened if it were not for the heightened awareness that your letters
Another bit of
evidence about this is that the CMS administrator made a comment in a Senate
committee hearing about the number of letters his office received on the
issue of low reimbursement rates for ostomy supplies. It was arranged that
his office would receive a copy of each letter you sent to Congress on that
Although this bill did not come up for a vote in the session of Congress
that concluded in early December, this is not unusual for a new bill.
Co-sponsorship has grown as a result of our letters, and this really
improves the chances that the bill will be successful in the long run.
One feature of this
particular campaign should be noted, and applauded. The issue of IBD caused
you--UOA members--to ask your friends and relatives to come to the UOA
Advocacy page and send a message -- even though they are not chapter or
association members. We are very grateful for that.
We also hope that
you will do the same for other issues in the future ... you don't have to
have a stoma to educate an elected official that ostomy products should be
The entire durable medical equipment industry heaved a sigh of relief when
Congress adjourned without passing a bill that would impose competitive
bidding in some part of the US (except for two test areas that have been
ongoing). However, there are some very strong proponents of this as a way to
control Medicare costs and to find funds to pay for other desirable things
such as a prescription drug plan. The campaign is not over but only taking a
Still, there has
been some evidence that one of the strongest proponents, Florida's Senator
Graham, is slightly less committed to it than he was. We think we can take
at least a little credit for that, as our FL colleagues generated a very
high volume of "noise" on this issue.
There is no doubt,
though, that the issue will return when Congress reconvenes, and we will
have to continue to educate our eelected officials that competitive bidding
is inappropriate as a method for providing ostomy supplies (or other DME).
We hope we can count
on your continued support and activity on these and other issues as they
arise. The Government Affairs
continue to be actively engaged in a variety of advocacy-related areas, but
we rely very heavily on YOU to interpret the issues to YOUR elected
officials, educate them about how the issue affects YOUR life and, as one of
their constituents, seek their action and assistance.
We hope you have had
a chance to see the new UOA website design, and that you will bookmark the
location of the Advocacy page
www.uoa.org/advocacy. Visit on a regular basis and note the new look
within the Advocacy page that will be introduced over the next few weeks. We
will try to more clearly define news items, and (in the best New Year's
Resolution tradition) put the Advocacy home page on a diet, highlighting
there only the most urgent issues.
This plan emerges
from a recent conference call with a technical advisor at Capitol Advantage
(from whom we "rent" the communication software), who says we are doing
better than many of their customers, but can still take some steps to
maximize the usefulness of the page. The planned "tweaking" will make it
more user-friendly for you and will help us more effectively achieve our
ultimate objective of impacting on the public policy decisions that affect
Three things YOU can
do, if you would, please:
inform others in your chapter that the Advocacy page exists and ask them to
join the "Action E-list" as you have. See the "Pass the Word" section at the
very bottom of the front page for a quick and easy way. Tell your chapter
newsletter editor, your chapter's webmaster, etc.
specific issues arise, please encourage other chapter members, family and
friends to visit the site and send their own message.
that in future we will often ask you to fill in your own "subject" when you
send a letter to your Members of Congress. It has been pointed out to us
that if a Senator gets 10 or 15 letters with the same subject heading, their
staff is quick to realize that some organization is orchestrating the
message -- and might begin to ignore other letters with the same subject at
the top. This really defeats the process, as we want additional messages to
be read and to be reinforcements of our view. Our message text will still be
there (and we do hope you will enhance it with some personal information) --
all we ask is that you compose your own subject field, so the messages look
a bit more individual when they are received in Congressional offices.
THANK YOU AGAIN for
all your help and support in 2002. We look forward to working with you in
2003 to help other UOA members and to achieve public policy decisions that
will be good for people with an ostomy
Ostomy Discussion Forums
Ostomy Related Discussion Forums where one
may post and or find answers to
questions about living with an Ostomy:
United Ostomy Association:
The Overactive Ileostomy
from So. NV
Oklahoma City (OK)
ileostomy can result from a variety of problems. If the small bowel is
inflamed due to Crohn's disease, radiation injury, or bacterial/viral
enteritis, the output will be profuse. If there is narrowing of the small
bowel close to the stoma, where the ileostomy goes through the abdominal
wall, a pressure backup can lead to explosive high output.
Any food that has a
laxative effect should be eliminated or, at best, kept to a minimum. People
with lactose intolerance will have high output if they use any kind of milk
product, including powdered milk, which is found in many prepared foods.
of fluids will also increase the ileostomy output. An ostomate who has had a
gall bladder removed may have increased output. Medicines to counteract bile
salts can be used if the problem is related to gall bladder removal. Many
prescriptions and OTC drugs list diarrhea as a side effect.
The ostomate should
work with his physician to evaluate the problem. Once disease can be ruled
out, therapeutic emphasis can be placed on diet, utilizing foods that
decrease output. Bulk laxatives can be used with each meal to absorb and
solidify some of the liquid output.
Chat Room Weekly Meetings
Peoples with Ostomy2*
- Mondays, 8:00 pm US Central time
StuartOnline Ostomy Chat*
- Tuesdays, 8:00 pm US Central time
Zero (Ostomy) Support*
- Wednesdays, 9:00 pm US Eastern time
Jason's Chat* -
Saturdays, 8:00 pm UK time / 3:00pm US Eastern Time
UK Ostomy Support*
- 1st & 3rd Sundays, 8:00 pm UK time / 3:00 pm US Eastern Time
Provided as a courtesy
by Jacksonville UOA Chapter.
These Chat Rooms are the work of individuals and do not represent any